Spinal Cord Injury

Spinal cord injury can result in paralysis of the muscles used for breathing; paralysis and/or loss of feeling in all or some of the trunk, arms, and legs; weakness; numbness; loss of bowel and bladder control; and numerous secondary conditions including respiratory problems, pressure sores, and sometimes fatal spikes in blood pressure. Approximately 12,000 new spinal cord injuries occur in the U.S. each year. A majority of injuries occur from motor vehicle accidents, falls, work-related accidents, sports injuries, and penetrations such as stab or gunshot wounds.

Our Membership Community

Our membership community provides a lifeline for many individuals that are focused on regaining their independence and improving their quality of life––whether they are leaving rehab after sustaining a spinal cord injury, learning to live with symptoms of a spinal cord disorder, or have spent years of frustration coping with disability. We provide members guidance and resources on a variety of topics they are passionate about, such as employment, affordable housing, transportation, health care, home- and community-based independent living, education, peer support, and leisure and recreation.

Ask Us

United Spinal’s Ask Us program connects you with information, resources, and access to our “Ask Us Spinal Cord Central” help center. Browse the Knowledge Books below for answers to your questions. If you can’t find what you are looking for just Ask Us and one of our knowledgeable staff will provide you with answers.
You are here >>:///21st Century Cures Act – We Made It Happen!

21st Century Cures Act – We Made It Happen!

The 21st Century Cures Act, passed both chambers of Congress and was signed by President Obama at a signing ceremony in Washington, D.C.  on December 13th.

Thanks go to our advocacy community for your help in getting this important bill passed. This bill is the largest bill to pass since the Affordable Care Act in 2010.

It provides:

  • $4.8 billion to National Institutes of Health;
  • $1.8 billion for Cancer Moonshot to speed cancer research;
  • $1.5 billion for the BRAIN initiative to improve our understanding of diseases like Alzheimer’s and speed diagnosis and treatment;
  • $1.5 billion for the president’s Precision Medicine Initiative to drive research into the genetic, lifestyle and environmental variations of disease;
  • $1 billion in grants to states to address the opioid crisis.
  • $500 million to the Food and Drug Administration.

 

There were several provisions within this bill that United Spinal successfully advocated for:

  • Extend for six months through June 30, 2017 the exemption of power CRT chairs from restrictive competitive bidding prices (ROCH 2016 priority);
  • Require the Centers for Disease Control and Prevention to track and collect data on the epidemiology of neurological diseases (ROCH 2016 priority: R. 292/S. 849 Advancing Research for Neurological Diseases Act);
  • Improve Medical Rehabilitation Research at the National Institutes of Health – a director-level position will be created at the National Institutes of Health to develop a comprehensive plan for the conduct, support, and coordinationof medical rehabilitation research (ROCH 2016 priority: S.800/H.R. 1631, the Enhancing the Stature and Visibility of Medical Rehabilitation Research at the NIH Act);
  • Help bring drugs and devices to market more quickly and at less cost by making needed reforms to the FDA, including: expedited review for breakthrough devices, increased patient involvement in the drug approval process, a streamlined review process for drugs and devices;

The new 115th Congress will start in January, and with your help, United Spinal will work diligently to make sure the needs of our community continue to be met.

 

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By | 2017-06-23T20:50:28+00:00 December 17th, 2016|Latest, United Spinal Updates|