United Spinal Association is committed to advancing public policies that lead to greater civil rights and independence for people with disabilities. Throughout our history, we have advocated on behalf of individuals living with spinal cord injuries and disorders through state and federal legislation and accessibility litigation in the courts. Our members know that we are on their side and we will remain there until our support is no longer needed. By leveraging all of our resources, we have stronger involvement in community affairs and more opportunities to advance public policies allowing us to form key alliances that expand the reach of our mission.
A Separate Medicare Complex Rehabilitation Technology Benefit is Needed
We support the passage of HR 942/S. 948, Ensuring Access to Quality Complex Rehabilitation Technology Act, which will create a separate benefit category for complex rehab technology and ensure access to critical medical equipment for people with disabilities.
Consumer Access to Prescribed Urological Prosthetics and Supplies
We want to ensure that all individuals with a medical condition or disability requiring urological prosthetic supplies have access to the supplies prescribed by their health care providers.
Congressional Bipartisan Disabilities Caucus
We urge members of Congress to join the United States House of Representatives’ Bipartisan Disabilities Caucus and support the rights of individuals living with disabilities.
My Medicaid Matters: Protect and Increase Essential Home and Community-Based Services
We promote adequate funding for all Medicaid services that allow people with disabilities to remain in their homes and contribute to the community.
UN Convention on the Rights of Persons with Disabilities (Disabilities Treaty)
We support ratification of the Disabilities Treaty to continue to advance the rights of people with disabilities throughout the world.
A Path to an Improved Quality of Life: Support the ABLE Act of 2013
United Spinal Association is withholding its support for the ABLE Act at this time, please see attached letter for more information. We supported an earlier version of the ABLE Act which would have helped individuals and families save private funds to support people with disabilities for the purpose of maintaining their health, independence, and quality of life.
Safety, Access and Choice of Biologic Medicines
Choice, access and safety should be at the center of any decision to provide, substitute or switch therapies and should only be decided by the consumer and health care provider. Consumer choice needs to be preserved and clinical and regulatory decisions must be based on sound science.
Transportation Equity: Ensure Access to All Modes of Transportation
We believe people with disabilities should have access to traditional and alternative modes of transportation so that they can participate in society as fully as they wish and live independently in the setting they choose.