You are here>> Home » Latest » United Spinal Updates » United Spinal Calls for Affordable Care Act Replacement Plan that Protects Americans with Disabilities

United Spinal Calls for Affordable Care Act Replacement Plan that Protects Americans with Disabilities

United Spinal’s president and CEO James Weisman recently sent a letter to President Trump requesting that he ensures a replacement plan is in place for the Affordable Care Act (ACA) before Congress takes action that will hurt the 45,000 members of our organization and the hundreds of thousands of paralyzed people residing in the United States.


January 23, 2017

The President
The White House
1600 Pennsylvania Avenue NW
Washington, DC 20500

Dear Mr. President,

I write on behalf of the 45,000 members of our organization and the hundreds of thousands of paralyzed people residing in the United States.

The Affordable Care Act (ACA), and most specifically, its provision prohibiting health insurers from offering policies that exclude or limit coverage for pre-existing conditions, is the gateway to employment for paralyzed people. For generations, people with disabilities could not risk losing the support of government programs for their health care, like Medicaid and Medicare, to go back to work, or even seek employment for the first time, because their employers’ insurance policy would impose waiting periods before covering disabling conditions or not cover them at all. This kept people at home, who were educated, trained and employable, and dependent on taxpayers for their health care.

If the prohibition is repealed and the replacement does not protect those with pre-existing conditions, employment for our members and other people with disabilities is a largely illusory goal. The Affordable Care Act’s guarantee of health care regardless of disabling conditions could have become as significant in our nation’s history for people with disabilities as the Emancipation Proclamation was for black people.

For people with disabilities to live independently they need access to housing, transportation, employment and, most importantly, health care. As a candidate, you stated that the replacement would happen at the same time as the repeal. Recent news reports indicate that Congress may not agree.

Please reiterate your campaign commitment to keep the prohibition against pre-existing conditions and limitations out of any replacement legislation and ensure that the replacement plan exists before Congress takes action that will hurt our members and all people with disabilities.

Thank you for your consideration.

Yours truly,

James Weisman
President & CEO
United Spinal Association

2017-06-22T22:45:38+00:00 January 24th, 2017|Categories: Latest, United Spinal Updates|

Spinal Cord Injury

Spinal cord injury can result in paralysis of the muscles used for breathing; paralysis and/or loss of feeling in all or some of the trunk, arms, and legs; weakness; numbness; loss of bowel and bladder control; and numerous secondary conditions including respiratory problems, pressure sores, and sometimes fatal spikes in blood pressure. Approximately 12,000 new spinal cord injuries occur in the U.S. each year. A majority of injuries occur from motor vehicle accidents, falls, work-related accidents, sports injuries, and penetrations such as stab or gunshot wounds.

Our Membership Community

Our membership community provides a lifeline for many individuals that are focused on regaining their independence and improving their quality of life––whether they are leaving rehab after sustaining a spinal cord injury, learning to live with symptoms of a spinal cord disorder, or have spent years of frustration coping with disability. We provide members guidance and resources on a variety of topics they are passionate about, such as employment, affordable housing, transportation, health care, home- and community-based independent living, education, peer support, and leisure and recreation.

Ask Us

United Spinal’s Ask Us program connects you with information, resources, and access to our “Ask Us Spinal Cord Central” help center. Browse the Knowledge Books below for answers to your questions. If you can’t find what you are looking for just Ask Us and one of our knowledgeable staff will provide you with answers.