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Ensure Quality Medicaid Long-Term Services and Supports and Managed Care

United Spinal Association advocates for policies that ensure access to quality, affordable healthcare and support services that meet the needs of people with spinal cord injuries and disorders and other disabilities.

Medicaid provides health and services coverage to nearly 10 million non-elderly people with disabilities and nearly 4 million Medicare beneficiaries with disabilities. Medicaid funds most long-term services and supports (LTSS), including personal care attendants, home modifications, and transportation. Many states, seeking to reduce costs, have instituted or are exploring a new model called Medicaid Managed Long-Term Services and Supports (MLTSS).

Under MLTSS all healthcare services and supports are managed by a third-party organization. MLTSS can improve and expand access to services, but there are risks. There may be changes in the list of providers that consumers may visit. If there are harmful cuts or a decrease in quality, a consumer voice is vital to demanding the quality care that consumers deserve. United Spinal supports efficient provision of services, but not at the expense of people with disabilities who rely on those services and supports to live full lives in the community.

United Spinal and coalition partners have developed principles for providing quality managed care services. United Spinal has shared these principles, our concerns, and consumer stories with state and federal agency officials, and other policymakers, including the Centers for Medicare and Medicaid Services (CMS) and the Administration on Community Living (ACL).

2017-10-13T12:58:41+00:00 August 22nd, 2017|Categories: Advocacy, Latest, United Spinal Updates|

Spinal Cord Injury

Spinal cord injury can result in paralysis of the muscles used for breathing; paralysis and/or loss of feeling in all or some of the trunk, arms, and legs; weakness; numbness; loss of bowel and bladder control; and numerous secondary conditions including respiratory problems, pressure sores, and sometimes fatal spikes in blood pressure. Approximately 12,000 new spinal cord injuries occur in the U.S. each year. A majority of injuries occur from motor vehicle accidents, falls, work-related accidents, sports injuries, and penetrations such as stab or gunshot wounds.

Our Membership Community

Our membership community provides a lifeline for many individuals that are focused on regaining their independence and improving their quality of life––whether they are leaving rehab after sustaining a spinal cord injury, learning to live with symptoms of a spinal cord disorder, or have spent years of frustration coping with disability. We provide members guidance and resources on a variety of topics they are passionate about, such as employment, affordable housing, transportation, health care, home- and community-based independent living, education, peer support, and leisure and recreation.

Ask Us

United Spinal’s Ask Us program connects you with information, resources, and access to our “Ask Us Spinal Cord Central” help center. Browse the Knowledge Books below for answers to your questions. If you can’t find what you are looking for just Ask Us and one of our knowledgeable staff will provide you with answers.