United Spinal Association advocates for policies that ensure access to quality, affordable healthcare and support services that meet the needs of people with spinal cord injuries and disorders and other disabilities.
Medicaid provides health and services coverage to nearly 10 million non-elderly people with disabilities and nearly 4 million Medicare beneficiaries with disabilities. Medicaid funds most long-term services and supports (LTSS), including personal care attendants, home modifications, and transportation. Many states, seeking to reduce costs, have instituted or are exploring a new model called Medicaid Managed Long-Term Services and Supports (MLTSS).
Under MLTSS all healthcare services and supports are managed by a third-party organization. MLTSS can improve and expand access to services, but there are risks. There may be changes in the list of providers that consumers may visit. If there are harmful cuts or a decrease in quality, a consumer voice is vital to demanding the quality care that consumers deserve. United Spinal supports efficient provision of services, but not at the expense of people with disabilities who rely on those services and supports to live full lives in the community.
United Spinal and coalition partners have developed principles for providing quality managed care services. United Spinal has shared these principles, our concerns, and consumer stories with state and federal agency officials, and other policymakers, including the Centers for Medicare and Medicaid Services (CMS) and the Administration on Community Living (ACL).