Comments on: NARCOMS Report–Symptomatic Medication and Cognitive Impairment in MS http://www.unitedspinal.org/msscene/2007/01/16/narcoms-report-symptomatic-medication-and-cognitive-impairment-in-ms/ The larger view on multiple sclerosis Wed, 14 Apr 2010 19:26:02 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: Cindy Erhardt http://www.unitedspinal.org/msscene/2007/01/16/narcoms-report-symptomatic-medication-and-cognitive-impairment-in-ms/comment-page-1/#comment-2072 Cindy Erhardt Thu, 12 Apr 2007 23:21:52 +0000 http://www.unitedspinal.org/msscene/?p=178#comment-2072 I started on Provigil almost a year ago, and I dearly LOVE it!! I had previously tried Ritalin, which worked for awhile, but the dosage kept having to be increased. Finally, my tolerance was just too high, and it was no longer effective for me. After researching Amantadine, it seemed that that particular drug had too many side-effects that would interfere with my bowel program and such. So on recommendation of the Mayo Clinic, I switched to Provigil. So my main question: Is there anything currently in the works, or any way to try to get meds (like Provigil) re-classified as an MS drug? Now that I am on Medicare, I have had to enroll with a Medicare Part D company. I have had to fight and fight to get coverage for Provigil. The reason given by the Part D company is that "Provigil is not indicated for treatment of MS". This is thoroughly frustrating!! How can this be remedied? I started on Provigil almost a year ago, and I dearly LOVE it!! I had previously tried Ritalin, which worked for awhile, but the dosage kept having to be increased. Finally, my tolerance was just too high, and it was no longer effective for me. After researching Amantadine, it seemed that that particular drug had too many side-effects that would interfere with my bowel program and such. So on recommendation of the Mayo Clinic, I switched to Provigil.
So my main question: Is there anything currently in the works, or any way to try to get meds (like Provigil) re-classified as an MS drug? Now that I am on Medicare, I have had to enroll with a Medicare Part D company. I have had to fight and fight to get coverage for Provigil. The reason given by the Part D company is that “Provigil is not indicated for treatment of MS”. This is thoroughly frustrating!! How can this be remedied?

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