Comments on: Clinical Trial, Open for Enrollment: Stem Cell Therapy for Patients With MS Failing Interferon––A Randomized Study http://www.unitedspinal.org/msscene/2008/11/13/stem-cell-therapy-for-patients-with-ms-failing-interferon%e2%80%93%e2%80%93a-randomized-study/ The larger view on multiple sclerosis Wed, 14 Apr 2010 19:26:02 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: Donn Steigleder http://www.unitedspinal.org/msscene/2008/11/13/stem-cell-therapy-for-patients-with-ms-failing-interferon%e2%80%93%e2%80%93a-randomized-study/comment-page-1/#comment-7997 Donn Steigleder Mon, 25 May 2009 17:03:06 +0000 http://www.unitedspinal.org/msscene/?p=286#comment-7997 My husband has been in a study for RRMS for a little over two years taking Avonex and Capoxone in combination (although it's a blind study, side effects indicate he has been on both). He seems to be getting progressively worse however. This past year he has had two exacerbations treated with IV steriods. The last steriod treatment was last week and we're waiting to see if it results in improvement. If not, his diagnosis may change to secondary progressive. Would he be eligible for your study and is there another website that gives more detail on the program. We live in Richmond VA My husband has been in a study for RRMS for a little over two years taking Avonex and Capoxone in combination (although it’s a blind study, side effects indicate he has been on both). He seems to be getting progressively worse however. This past year he has had two exacerbations treated with IV steriods. The last steriod treatment was last week and we’re waiting to see if it results in improvement. If not, his diagnosis may change to secondary progressive. Would he be eligible for your study and is there another website that gives more detail on the program. We live in Richmond VA

]]> By: Callie Caldwell http://www.unitedspinal.org/msscene/2008/11/13/stem-cell-therapy-for-patients-with-ms-failing-interferon%e2%80%93%e2%80%93a-randomized-study/comment-page-1/#comment-7245 Callie Caldwell Mon, 23 Feb 2009 17:09:33 +0000 http://www.unitedspinal.org/msscene/?p=286#comment-7245 I am a 37 year old female. I have recently been diagnosed with MS. 3 weeks ago. I am currently active and working as a speech therapist in an Arkansas school district and I am the mother of twin 20 month old boys. I would very much like the opportunity to be part of this study and possibly reverse some symptoms and heed progression of this disease. I believe I meet all necessary criteria. Callie Caldwell I am a 37 year old female. I have recently been diagnosed with MS. 3 weeks ago. I am currently active and working as a speech therapist in an Arkansas school district and I am the mother of twin 20 month old boys. I would very much like the opportunity to be part of this study and possibly reverse some symptoms and heed progression of this disease. I believe I meet all necessary criteria.
Callie Caldwell

]]> By: Pamela Kanaly http://www.unitedspinal.org/msscene/2008/11/13/stem-cell-therapy-for-patients-with-ms-failing-interferon%e2%80%93%e2%80%93a-randomized-study/comment-page-1/#comment-7144 Pamela Kanaly Fri, 13 Feb 2009 02:19:31 +0000 http://www.unitedspinal.org/msscene/?p=286#comment-7144 Hello, I am 50 years old. I was diagnosed with relapsing remitting MS in 1986. I started on Betaseron for several years, then was placed on Avonex and then again on Betaseron. I was started on Copaxone in 2004. Naturally, I have had several relapses over the years with solumedrol being the treatment of choice. This January, I completed a 6 mos treatment of Solumedrol, 1 Gm IV per month. I have been followed with MRI's throughout my course. My original diagnosis was made with an MRI, CSF, bloodwork and an evoked potential. I am followed at an MS neuro science institute. I am an RN, still working, walking with a forearm crutch, but also using a scooter. I have balance issues and my right leg is affected, including foot drop. I am very healthy otherwise. Married with a supportive husband and three grown supportive children, 2 grandchildren. Thank you for your consideration, Pam. Hello,
I am 50 years old. I was diagnosed with relapsing remitting MS in 1986. I started on Betaseron for several years, then was placed on Avonex and then again on Betaseron. I was started on Copaxone in 2004.
Naturally, I have had several relapses over the years with solumedrol being the treatment of choice. This January, I completed a 6 mos treatment of Solumedrol, 1 Gm IV per month. I have been followed with MRI’s throughout my course. My original diagnosis was made with an MRI, CSF, bloodwork and an evoked potential. I am followed at an MS neuro science institute. I am an RN, still working, walking with a forearm crutch, but also using a scooter. I have balance issues and my right leg is affected, including foot drop. I am very healthy otherwise. Married with a supportive husband and three grown supportive children, 2 grandchildren. Thank you for your consideration, Pam.

]]> By: Wendy Huntley http://www.unitedspinal.org/msscene/2008/11/13/stem-cell-therapy-for-patients-with-ms-failing-interferon%e2%80%93%e2%80%93a-randomized-study/comment-page-1/#comment-7086 Wendy Huntley Sun, 08 Feb 2009 04:14:09 +0000 http://www.unitedspinal.org/msscene/?p=286#comment-7086 Hi, I was diagnosed with RR MS in 2003 at the age of 43. Have had 2 serious attacks of my MS. The first was when I was diagnosed. Diagnosis was made by MRI and Spinal tap: Oligloconal bands of 16. Thought I was having a stroke with memory and cognition problems, numbness and gait issues. Had 12 lesions in my brain.In Nov 2008 I had a sudden and unexpected exacerbation which landed me in the ER with seizures due to a "giant" lesion in my Right temporal, perietal (?sp) lobe and cortex. Identified by MRI. Am now on Anti-seizure meds. Both attacks required IV Solumedrol. I have been on Rebif 44mg q 3 days since 2003. Will be having repeat MRI w/o contrast and a Sleep deprivation EEG on Mon. 2/9/09. Thank you for your consideration, Wendy Hi,
I was diagnosed with RR MS in 2003 at the age of 43. Have had 2 serious attacks of my MS. The first was when I was diagnosed. Diagnosis was made by MRI and Spinal tap: Oligloconal bands of 16. Thought I was having a stroke with memory and cognition problems, numbness and gait issues. Had 12 lesions in my brain.In Nov 2008 I had a sudden and unexpected exacerbation which landed me in the ER with seizures due to a “giant” lesion in my Right temporal, perietal (?sp) lobe and cortex. Identified by MRI. Am now on Anti-seizure meds. Both attacks required IV Solumedrol. I have been on Rebif 44mg q 3 days since 2003. Will be having repeat MRI w/o contrast and a Sleep deprivation EEG on Mon. 2/9/09.
Thank you for your consideration, Wendy

]]> By: Ellen M Michaels http://www.unitedspinal.org/msscene/2008/11/13/stem-cell-therapy-for-patients-with-ms-failing-interferon%e2%80%93%e2%80%93a-randomized-study/comment-page-1/#comment-7059 Ellen M Michaels Sun, 01 Feb 2009 00:48:30 +0000 http://www.unitedspinal.org/msscene/?p=286#comment-7059 Hello, I am very interested in your study. I was diagnosed 5/08 with RR MS. This diagnosis was made with MRI scans and a spinal tap. I have been on Rebif since August of 08 and have had 2 relapses which were treated with Solumed. I am 46 years old and have been in great health until MS. I believe I am within the critiria. Would you please contact me with more information? Thank you. Regards, Ellen Michaels Hello,
I am very interested in your study. I was diagnosed 5/08 with RR MS. This diagnosis was made with MRI scans and a spinal tap. I have been on Rebif since August of 08 and have had 2 relapses which were treated with Solumed. I am 46 years old and have been in great health until MS. I believe I am within the critiria.
Would you please contact me with more information? Thank you. Regards, Ellen Michaels

]]> By: Sue Story http://www.unitedspinal.org/msscene/2008/11/13/stem-cell-therapy-for-patients-with-ms-failing-interferon%e2%80%93%e2%80%93a-randomized-study/comment-page-1/#comment-6948 Sue Story Fri, 19 Dec 2008 19:35:03 +0000 http://www.unitedspinal.org/msscene/?p=286#comment-6948 I was diagnoses with R/R MS and began treatment using BetaSeron in 2003. My diagnosis changed from R/R to secondary progressive in 2005. I continued taking Betaseron. In 2005 I started falling even when using my walker and figured I would soon need to start using a wheelchair. It was at that time that I stopped using BetaSeron. I have not fallen since. I am no longer on any interferon drug and do no wish to go on any of them. Would I be eligible for this study? I was diagnoses with R/R MS and began treatment using BetaSeron in 2003. My diagnosis changed from R/R to secondary progressive in 2005. I continued taking Betaseron. In 2005 I started falling even when using my walker and figured I would soon need to start using a wheelchair. It was at that time that I stopped using BetaSeron. I have not fallen since.

I am no longer on any interferon drug and do no wish to go on any of them.

Would I be eligible for this study?

]]> By: Sherry Dufort http://www.unitedspinal.org/msscene/2008/11/13/stem-cell-therapy-for-patients-with-ms-failing-interferon%e2%80%93%e2%80%93a-randomized-study/comment-page-1/#comment-6898 Sherry Dufort Thu, 20 Nov 2008 22:06:53 +0000 http://www.unitedspinal.org/msscene/?p=286#comment-6898 I have secondary progressive MS and have been on betaseron and avonex,each for 5 years. I have not been on any interferion treatment for atleast 5 years.I have been diagnoised for 15 years I am in a wheelchair. I live in Florida. I did not know if I qualify for this trial. I look forward to your response. Thank you for your time. Sherry I have secondary progressive MS and have been on betaseron and avonex,each for 5 years. I have not been on any interferion treatment for atleast 5 years.I have been diagnoised for 15 years I am in a wheelchair. I live in Florida. I did not know if I qualify for this trial. I look forward to your response.
Thank you for your time.
Sherry

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