Fire Safety For Wheelchair UsersUnited Spinal Association, has developed a free online training program designed to save the lives of individuals with disabilities and mobility impairments during fire emergencies.
Go there
Mobility Allternatives: From Canes To Wheelchairs
This free publication, written by master clinician and educator Jean Minkel, MA, PT, is a guide that assists people in making the right choice in their selection of a mobility device. View publications.
Accessible Air Travel
Knowing what to expect from the time an airline reservation is booked to the moment the flight touches down takes the surprises out of traveling.
View publications.
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Today more advocates for the disabled took aim at discriminatory legislation that would allow as many as 30,000 non-accessible taxis in a new “street-hail” system, urging Governor Cuomo to veto any measure that doesn’t provide equally for wheelchair users.
As we enter the final days of the Governor’s Wednesday deadline to sign or veto the legislation, the Disabilities Network of New York City, Helen Keller Services for the Blind, and United Spinal Association (formerly Eastern Paralyzed Veterans Association) called on the Governor to remain on the side of equality.
“We applaud Governor Cuomo’s willingness to stand up to discrimination,” said Susan Scheer, Disabilities Network of New York City. “All New Yorkers—regardless of physical disability—should have the right to hail taxis and liveries. To accept anything less would simply be unfair and unequal.”
Disabled New Yorkers are treated like second-class citizens under the city’s street-hail proposal,” said Deborah Rodriguez Samuelson, Helen Keller Services for the Blind. “It’s just plain wrong to expand street hails to neighborhoods like Bayside, Queens and Soundview in the Bronx– but not to make them accessible to tens of thousands of disabled New Yorkers throughout the city.”
“Whether you’re working in Midtown Manhattan or living in Park Slope, Brooklyn, this measure would ensure that taxi after taxi will pass you by if you’re in a wheelchair,” said James Weisman, SVP and General Counsel, United Spinal Association.
“We’re urging the Governor to stay strong and resist pressure to sign any bill that perpetuates discrimination,” he added.
Further Reading: Bloomberg’s Outer-Borough Taxi Bill Neglects Rights of Wheelchair Users
The Taxis For All Campaign has released a powerful new video that urges Mayor Bloomberg and New York City to convert the taxi system to full wheelchair accessibility.
Separate Is Not Equal from Hannah Kramer on Vimeo.
Right now, only one in 57 yellow taxis is accessible (231 out of 13,237) and only one in 1,565 (23 out of 35,995) livery vehicles are accessible, according to the City’s own data.
We believe New York City should stop discriminating against its own citizens and visitors who use wheelchairs and start requiring all taxis to be accessible.
Learn more and sign the petition.
New York City Mayor Michael Bloomberg is at it again, angering disability advocates and wheelchair users across the City––this time with his proposed outer-borough taxi bill that would create up to 30,000 permits for livery cars to pick up street hails outside of Manhattan.
Unfortunately, but not surprising given the Mayor’s track record, the livery cars are not required to be accessible to wheelchair users.
Bloomberg has proposed that someone in the Bronx, Brooklyn, Queens, or Staten Island should be able to hail a legal cab on the street. However, that “someone” does not include a person using a wheelchair.
Bloomberg seems bent on treating New York’s residents and tourists who use wheelchairs as second-class citizens. Bloomberg’s inaccessible choice for the City’s Taxi of Tomorrow echoes this sentiment.
As the Mayor has reiterated to the press that he doesn’t believe people using wheelchairs should be allowed to flag down a cab in the City, and he has spoken out against making the entire yellow taxi fleet accessible.
Despite Bloomberg’s delusionary thoughts on wheelchair users and what they can and cannot do, it’s currently against the law for a yellow cab to refuse to pick up a person who hails them from a wheelchair.
“Obviously, the mayor doesn’t know and doesn’t care,” said United Spinal’s General Counsel James Weisman.
“People with disabilities cross streets, live in tough neighborhoods, raise families, work and need to travel,” he added.
United Spinal isn’t alone in criticizing Bloomberg and the City’s position on accessible taxis. Governor Andrew Cuomo has called out the Mayor on the proposed bill, saying it violates the Americans with Disabilities Act.
“One of the main issues, there are several, but one of the main ones that’s at the top of the list, especially for me, are the rights of the disabled and the accessibility of the system. And that’s what we’ve been trying to grapple with over these past few days. I’m not going to have anything to do with a bill that does not respect the rights of the disabled community,” said Cuomo.
The Justice Department has also sided with United Spinal and other disability rights groups that filed a lawsuit in January 2011 against the New York City Taxi and Limousine Commission for failing to provide fair service to wheelchair users. Assistant U.S. Attorney Natalie Kuehler said the Taxi and Limousine Commission must have “equivalent service” for disabled people—meaning all new cabs in the fleet are wheelchair accessible.
In November, Iowa Senator Tom Harkin who chairs the Senate committee on Health, Education, Labor and Pensions held a hearing on Capitol Hill regarding the state of accessible transportation in the US. During his testimony, he showed support for United Spinal’s advocacy efforts to make the City’s taxi fleet fully accessible and criticized Mayor Bloomberg’s stance on the issue.
“More than 21 years since the passage of the ADA we have not yet achieved equality in access to transportation. The current situation in NYC with regard to taxicab accessibility is a good illustration of the barriers that people with mobility disabilities continue to face. I’m concerned if we continue to allow people with disabilities to be treated like second-class citizens when it comes to transportation access we will not achieve the goals of the ADA and we will not open up the doors to employment to everyone who can work and wants to work,” Harkin said.
United Spinal and other plaintiffs represented by Sid Wolinsky, Esq., Disability Rights Advocates, were in court on November 22 to present their case against the TLC and Mayor Bloomberg.
The City contends it’s not violating the law because it doesn’t operate the cabs themselves, drivers do.
The judge had difficulty accepting the City’s position that the TLC was free to discriminate against wheelchair-using passengers, at least in so far as the ADA is concerned, and has promised a decision before Christmas.
Further Reading: More Disability Advocates Urge Governor to Reject Discriminatory Taxi Bill
Tom Scott
Staff Writer
Join United Spinal Association’s Public Policy Staff for a Free Webinar to Address Attacks on Medicaid Services and Supports from Capitol Hill.
Date: Thursday, January 26, 2012
Time: 2:00 PM – 3:15 PM EST
Space is limited. Reserve your webinar seat now at: https://www2.gotomeeting.com/register/853960506
Are you an individual with a disability who receives medical services and/or community living supports under the Medicaid program? Or, are you a loved one of someone who does?
Proposed cuts to the Medicaid program at the federal level will endanger critical services and supports from coast-to-coast.
Join other participants on this webinar to see how you may be impacted by these proposals. Share your thoughts and concerns with United Spinal’s public policy staff. Find out how you can help preserve and improve community level services and supports. Don’t let your health and independence be threatened without a fight.
This webinar is the first in a series of webinars to better understand how federal programs work, or don’t work, on behalf of people with disabilities.
Make your voice be heard as we prepare to Roll on Capitol Hill.
After registering you will receive a confirmation email containing information about joining the webinar.
System Requirements
PC-based attendees
Required: Windows® 7, Vista, XP or 2003 Server
Macintosh®-based attendees
Required: Mac OS® X 10.5 or newer
For more information regarding the upcoming webinar, please contact Alexandra Bennewith, United Spinal’s director of Government Relations, at 202-556-2076 ext. 7102.
On November 15th, the Centers for Medicare and Medicaid Services (CMS) announced a widespread, three-year demonstration project that would, effective January 2012, require “prior authorization” for approval of power mobility devices for Medicare beneficiaries in seven states –– California, Florida, Illinois, Michigan, New York, North Carolina and Texas in which more than 43 percent of Medicare wheelchair users reside.
This CMS announcement was made without notice to Congress, Medicare beneficiaries, their physicians or the durable medical equipment (DME) suppliers. United Spinal Association has serious concerns that the project will contribute to confusion and chaos in the name of reducing expense and has asked that the project not be implemented.
Last week, United Spinal wrote a letter to key members of Congress and the CMS Administrator to oppose the project’s initiation, demanding a more thorough process for public input be provided and urging CMS to work with Congress and power mobility stakeholders to identify alternative approaches that will fulfill CMS’ interests in reducing overpayment and fraud and abuse without potentially creating significant disruptions of services to the disability and aged communities.
The first phase of the project requires a “prepayment review” of all power mobility claims submitted for payment. The problem is that this review will occur after the power wheelchair has been dispensed and begun to be used by the beneficiary.
CMS should not restrict access to medical care or rescind care that has already been provided. With a considerable percentage of the currently high error rates reported on these claims being attributable to paperwork inaccuracies or omissions, suppliers are placed in the position of potentially having to remove denied mobility devices from beneficiaries’ homes when the medical necessity may be genuine and subsequently proven on appeal. Most beneficiaries have genuine needs for their PMD and most appeals of denials are eventually overturned.
Beneficiaries should not be burdened with the uncertainty of the pre-payment review phase or denied their mobility independence while CMS develops and implements an untested, prior authorization process. Nor should beneficiaries, often living on limited fixed incomes, be placed in a position of paying their deductible and 20 percent copayment only to be at risk for having the device repossessed if the claim is denied for any reason.
In phase two of the project, CMS will move to a newly developed “prior authorization” program in the seven states three to nine months after the implementation of the project. The expense of developing an entirely new process and disrupting beneficiaries’ lives in the process is not justifiable and could be averted if CMS moved directly to an effective prior authorization process with opportunity for input from Congress, the public and the mobility device industry.
Does Medicare have to recreate the wheel for such a program? We think not! There are many effective examples in use by private insurers and other government programs. Rather than build a new process, we see no rationale for not adopting or adapting the well-established and highly successful process for prior authorization that is now in use by 49 of the nation’s State Medicaid programs, as well as by Medicare Managed Care Plans. Moreover, Medicare can do more to help physicians with templates and the capacity for electronic submissions to make more accurate and efficient the medical necessity documentation process to ensure Medicare beneficiaries’ timely access to needed mobility equipment.
Alexandra Bennewith
Director of Government Relations
United Spinal Association
Further Reading: Homecare Providers and Consumer Advocates Urge Congress to Stop Ineffective Medicare Payment Review Process for Mobility Equipment

Representatives of 16 National Spinal Cord Injury Association chapters met with United Spinal president Paul J. Tobin and a number of United Spinal and NSCIA staff members Oct. 31-Nov. 2 at the Marriott World Center in Orlando, Fla., for a Chapter Development Workshop.
Over two days of intensive meetings, chapter representatives shared their experiences, needs and vision while learning about United Spinal and its plans for NSCIA following the two organizations’ recent merger.
The event covered everything from fundraising and board development to membership benefits and possible future events. The gathering also allowed the 40-plus people in attendance a chance to socialize and build relationships that will help them run their chapters.
“It was great to see so many familiar, friendly faces and meet all the new ones,” says Angie Plager, president of the Iowa chapter. “It really helped to learn about all the changes since the merger.”
“The Chapter Development Workshop was a unique opportunity to spend time together with the passionate individuals who lead our chapters. We listened to chapter heads as they shared their successes and their challenges. We updated chapters on the resources and supports available to them and to our members now that NSCIA is a program of United Spinal. We worked together to create a set of action items to bring those resources to bear in the most effective way possible,” says K. Eric Larson, United Spinal’s SVP of Membership and Chapter Services.
United Spinal and NSCIA merged in Spring 2011 to become the single, largest membership organization dedicated to improving the lives of people with spinal cord injuries and diseases (SCI/D) nationwide. As part of this merger, NSCIA is now the membership division of United Spinal Association.
United Spinal’s UsersFirst program has teamed up with MS. Wheelchair America (MWA) to host a webinar series for current and former MWA title-holders to enhance their communication, peer-mentoring and advocacy skills.
The webinars offer guidance on topics such as public speaking; leadership; sexuality; fashion; health and wellness; and caregiver relationships.
“If we can help one person connect with a resource that they were not aware of or find the confidence to use her voice for personal or social change then this webinar series will be worth it,” said Autumn Grant, MA, senior academic advisor, Academic Achievement Center, Bridgewater State University and a former MWA title holder.
“During our discussions with Ms. Wheelchair America we realized the two organizations’ missions complimented each other. MWA and UsersFirst focus on advocacy and empowerment for people who use wheelchairs. The MWA title-holders are located throughout the nation and this format provides them the opportunity to stay connected throughout the year,” said Ann Eubank, LMSW, OTR/L, ATP, VP of Community Relations at UsersFirst.
Read more at UsersFirst.org.
Dr. Siegel’s November 29 column “Don’t Take the ‘Medi’ out of Medicaid” appropriately identifies a financial challenge that is not merely a Medicaid problem but a reflection of the realities of our economic times and a broken healthcare system that has yet to adequately address the issue of cost.
With 1 in 6 U.S. families now living at or near poverty, we have seen considerable growth in Medicaid enrollment since the recent recession. According to a 2010 Urban Institute analysis, Medicaid has been more cost-efficient than private insurance based on spending per enrollee but is growing because of genuine need. States are responding to their fiscal challenges by cutting Medicaid and other expenses. Like Dr. Siegel, we too are concerned about providers denying or limiting access to Medicaid patients because of reduced payments, but that begs the question of what is adequate payment.
According to the Organization for Economic Cooperation and Development (OECD), among industrialized nations, U.S. health spending ($7,960 per person) is more than 50 percent higher than in the next costliest nation, Norway ($5,352), and more than double Britain’s ($3,874) and France’s ($3,978) and the OECD member average ($3,233). This cost difference in America does not equate with appreciably better outcomes and we do far worse on many health indicators such as our 34th place ranking on infant mortality.
We spend more despite other nations having more doctors per capita and nearly double the average number of doctor consultations annually. And yet, a recent Commonwealth Fund study concluded that more than 40 percent of Americans went without care in 2009 because of cost. Our steep costs continue to rise and high-cost procedures such as knee replacement, appendectomy and angioplasty are undertaken far more often at significantly higher costs than in other industrialized nations. As Dartmouth studies have indicated, costs for the same procedures can differ widely at hospitals within 60 miles of one another in the same states. Our health care system needs basic reforms to eliminate such unjustifiable discrepancies and achieve more genuine balance between cost and value.
Dr. Siegel notes that a 2009 study suggested that as much as a third of annual health expenditures are wasteful. He fails to acknowledge, however, that the Affordable Care Act (ACA) is the first comprehensive legislation to foster the kind of scrutiny and innovation that attempts to seriously address the waste, medical error, avoidable care, lack of care coordination, fraud and abuse and dubious care quality he describes. But these efforts are only a part of the answer and will take time to take root in a health care system that has long been too costly, fragmented and overspecialized. We have rewarded more, often unnecessary, care under in our fee-for-service payment system but have done too little to rein in costs.
Dr. Siegel’s inaccurate portrayal of Medicaid coverage of wheelchairs as excessive hits particularly close to home. I live with a spinal cord injury. My injury requires me to use a power wheelchair to maintain a productive and independent life. Medicare is the primary source of government support of wheelchair purchases and most state Medicaid programs, only after ensuring that stringent medical qualifications are met, will pay only the difference in what Medicare does not cover. After lengthy scrutiny, coverage for a medically-necessary wheelchair may be approved but it is not soon replaced as Dr. Siegel suggests. Instead, each wheelchair experiences several years of use, with approval of the costs of maintenance and necessary repairs often requiring long waiting periods. Medicaid’s typical “useful life” requirement for this durable medical equipment is 5-7 years, during which, significant changes in the medical condition of the patient that may require wheelchair upgrading are typically ignored until the minimum 5-year “useful life” is achieved.
Dr. Siegel highlights the Affordable Care Act’s expansion of Medicaid coverage to millions of new recipients – Americans who live at the fringes of poverty and cannot afford insurance otherwise – as merely exacerbating the problem. These are people whose health care costs are now being cross-subsidized by all those with insurance through premiums that have annually risen for small businesses at average double digit percentages, well beyond inflationary growth. The reality is absent coverage, these costs get shifted to those who can pay. Dr. Siegel rightly suggests that many limited care access turn to the hospital emergency room. But lacking coverage, they will often do so after their illness or injury becomes far more serious and costly to treat. Providing coverage to more of the uninsured will help to spread risk more fairly and help deal more directly with these hidden costs of health care.
Medicaid isn’t the culprit here, excessive health care cost is, particularly at a time when our ability to absorb these costs is weakened. We believe that the ACA’s incentives to shift the program’s current bias from institutional care to more home and community-based services and prevention will help measurably in this regard. Dr. Siegel’s recommendation that Medicaid recipients have “more skin in the game” via a system of co-pays is worthy of further exploration but the burden must be placed as well on physicians, hospitals, nursing homes, drug companies and other stakeholders in the healthcare industry who have resisted limits to their choices.
Paul J. Tobin, MSW
President and CEO
United Spinal Association
Attorneys for the plaintiffs, as well as the Assistant U.S. Attorney in the Southern District, argued that the city is in violation of the law — the Americans with Disabilities Act — since it runs a public transportation system, yet only 2 percent of cabs in the city can accommodate people in wheelchairs.
Simi Linton of Manhattan was one of a dozen disabled New Yorkers attending the hearing. “I feel optimistic that the judge understood the depth and the reach of the kind of discrimination that disabled people face daily.”
The city contends it’s not violating the law because it doesn’t operate the cabs themselves, drivers do.
Read more of the WNYC News Blog here.
United Spinal Association and other plaintiffs represented by Sid Wolinsky, Esq., Disability Rights Advocates, were in court on November 22 against New York City’s Taxi & Limousine Commission (TLC) and Mayor Bloomberg.
As you may know, we sued the City because only 1.7% of yellow cabs are accessible. The TLC controls the design of the cabs and refuses to require access even in its “Taxi of Tomorrow.” The TLC’s Taxi of Tomorrow competition winner was Nissan, a company that submitted an inaccessible design.
The City lost the motion to dismiss our case last June. Since then the US Justice Department (DOJ), in the form of the US Attorney for the Southern District of New York, has filed a Statement of Interest in the case supporting our position. This extremely rare action by DOJ did not intimidate the Mayor. He went on the radio and made one boneheaded remark after another, including, “It’s dangerous for people in wheelchairs to be in the streets of New York City,” and “. . . they will sit too far from the driver to establish a dialogue and therefore will leave small tips.”
Judge George Daniels heard our Motion for Summary Judgment, as well as the City’s Cross-Motion for Summary Judgment a few days ago. Judge Daniels treated our attorney well. However, he gave both the US Attorney and the City’s attorney a much harder time. The US Attorney, in supporting our position, argued that the TLC exercises so much control over the taxi system that it acts as an “operator” of the system and US Department of Transportation (USDOT) ADA regulations pertaining to local governmental entities that operate demand-responsive systems should apply to the TLC. The TLC argued it operates nothing – i.e., it merely licenses, permits and regulates taxis and its non-discrimination obligation under ADA does not pertain to taxi passengers, only to those it licenses.
The judge had difficulty accepting the City’s position that the TLC was free to discriminate against wheelchair-using passengers, at least in so far as the ADA is concerned, and some difficulty in accepting the US Attorney’s position that the TLC operates the taxi system, perhaps because he was afraid that his ruling might mean that most taxis in most cities had to be accessible, since they are licensed by a local governmental entity. There was much discussion between the judge and the US Attorney about the unique nature of NYC’s TLC. It controls models, design, color, service areas, fares, equipment and everything else an operator of a taxi system might control, unlike regulatory agencies in other cities.
The City, through its attorney, promised a dispatch service beginning in March 2012. Remember, the City failed miserably on its last attempt to dispatch accessible taxis, a program that was discontinued almost 2 years ago and not replaced.
The curious thing about the City’s position is why it wants to operate a dispatch system at all. Remember NYC’s yellow cab system is “hail” only – i.e., passengers cannot call to reserve a yellow cab ride; they must come out on the streets of Manhattan or at the airports and hail a taxi. If all new taxis were accessible, the hail system would be accessible and the City would play no role in providing rides to those with mobility impairments. Instead, the Bloomberg Administration would deny access and create a new headache for itself — running a dispatch program and ensuring its effectiveness, something wheelchair users have not requested.
Judge Daniels promised a decision before Christmas therefore, we may have a merry one.
James Weisman
SVP & General Counsel
United Spinal Association
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