August 7th, 2008
Eileen Abarca, BS––NARCOMS Bilingual Research Coordinator, Barrow Neurological Institute, Arizona; Patricia Davis, MS––NARCOMS Database Coordinator, Barrow Neurological Institute, Arizona; Tuula Tyry, PhD, MAEd––Program and Editorial Manager, Barrow Neurological Institute, Phoenix, Arizona
Introduction
North American Research Committee on Multiple Sclerosis (NARCOMS) program, a project of the Consortium of Multiple Sclerosis Centers (CMSC), is a long-term research project designed to facilitate research in the broad field of multiple sclerosis (MS). Read the rest of this entry »
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July 31st, 2008
To investigate the influence of maternal MS on pregnancy, this study compared pregnancy, delivery, and birth outcome in births prior to onset of MS (pre MS), between MS onset and diagnosis (early MS), and after diagnosis of MS (manifest MS). Read the rest of this entry »
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July 29th, 2008
The interrelation between chronic stress and MS has always been known, but the biological foundation for this phenomenon has not yet been proven. A case-study of five patients, both diagnosed with MS and PTSD, attempts to demonstrate various dimensions of interrelation between these two diseases. Read the rest of this entry »
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July 25th, 2008
The aim of this qualitative study performed by the Applied Research Centre in Health and Lifestyle Interventions in Coventry, UK, was to examine patients’ experiences of being diagnosed with MS, the information that they were given at this time, subsequent treatment, and its impact on their lives. Read the rest of this entry »
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July 25th, 2008
Access To and Utilization of Neurologists by People With MS This study examined access to and use of
neurologists among a broad, national sample of people with MS; identified demographic, economic, and clinical factors associated with access and use; and examined differences in treatment and management of MS. Read the rest of this entry »
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June 23rd, 2008
Health Care Resource Usage Among NARCOMS Participants
Patricia Davis, MS, NARCOMS Database Coordinator, Barrow Neurological Institute, Arizona; Tuula Tyry, PhD, MAEd, Program and Editorial Manager, Barrow Neurological Institute, Phoenix, Arizona
The NARCOMS update surveys routinely include questions related to health care provider visits and treatment patterns. The following article summarizes the responses to some of these questions in the fall 2007 update survey. We are very pleased to share the results with MSQR readers and very grateful for the collaboration of the 10,131 NARCOMS participants who responded to this survey.
Read the rest of this entry »
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May 28th, 2008
Denise Campagnolo, MD, MS, Director, Clinical MS Research, Barrow Neurological Institute, Phoenix, Arizona
Monoclonal antibodies (MABs) are a new class of therapy now used to combat multiple sclerosis (MS). There are several advantages of MABs compared to the other classes of drugs. At the heart of this advantage is the fact that MABs are designed to recognize specific unique antigens. Antigens are usually proteins that provoke an immune response. In MS, MABs provide a way to target very selective molecules that might prevent at least some if not all of the autoimmune attack on myelin.
Read the rest of this entry »
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May 19th, 2008
Barbara S. Giesser, MD, Clinical Professor of Neurology, David Geffen UCLA School of Medicine, Los Angeles, California
Introduction
Multiple sclerosis (MS) is a disease that invariably affects the ability to walk and move in a majority of patients. The ability to move may be affected by numerous impairments, including weakness, imbalance, fatigue, spasticity, and environmental conditions. Standard physical therapy and other rehabilitative techniques may improve function in these areas to some extent, but is not always successful. Read the rest of this entry »
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May 12th, 2008
Patricia Davis, MS, NARCOMS Database Coordinator, Barrow Neurological Institute, Arizona; Tuula Tyry, PhD, MAEd–Program and Editorial Manager, Barrow Neurological Institute, Phoenix, Arizona
Introduction
The NARCOMS update surveys routinely include questions related to health care provider visits and treatment patterns. The following article summarizes the responses to some of these questions in the fall 2007 update survey. We are very pleased to share the results with MSQR readers and very grateful for the collaboration of the 10,131 NARCOMS participants who responded to this survey. Read the rest of this entry »
Posted in All Articles, NARCOMS | No Comments »
May 7th, 2008
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May 7th, 2008
This article in Occupational Therapy International journal describes a three-phase project to identify and develop an occupational therapy response to the challenges experienced by caregivers of middle-aged and older adults with MS. Read the rest of this entry »
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May 5th, 2008
Patients with MS report sleep disturbances more frequently than the general population. Besides specific sleep disturbances, many other conditions could impair nocturnal rest in this population. In addition, information regarding the role of disrupted sleep on quality of life (QoL) in patients with MS is lacking. This study, reported in Sleep Medicine journal, was performed to bridge this gap. Read the rest of this entry »
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May 5th, 2008
An article published in Multiple Sclerosis journal reports objective fatigue management and energy conservation are effective strategies to minimize fatigue in MS. Sustained results have not yet been reported. A fatigue management course was provided for 32 patients with MS. Read the rest of this entry »
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February 4th, 2008
Jane W. Chan, MD–Associate Professor of Neurology Ophthalmology, Departments of Neurology and Ophthalmology, University of Kentucky Medical Center, Lexington, Kentucky
Risk Factors for Developing Optic Neuritis in Autoimmune Disease
Although optic neuritis most often affects young adults, atypical cases of optic neuritis are sometimes seen in elderly patients. Bilateral optic neuritis in childhood is not uncommon, and it is believed that in these cases there is less risk of progression to MS (Beck et al., 1993b). Read the rest of this entry »
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February 4th, 2008
Dean M. Wingerchuk, MD, MSc, FRCP(C)
A Historical Perspective on NMO
Neuromyelitis optica (NMO), also known as Devic’s disease, was identified more than one hundred years ago as a severe disorder affecting the spinal cord (causing paralysis) and both optic nerves (causing blindness). Read the rest of this entry »
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February 4th, 2008
2007 Registry Update
Patricia Davis, MS, NARCOMS Database Coordinator, Barrow Neurological Institute, Arizona; Tuula Tyry, PhD, MAEd, Program and Editorial Manager, Barrow Neurological Institute, Phoenix, Arizona
Introduction
CMSC/NARCOMS is a long-term MS research project driven by voluntary enrollee participation. Participants are asked to complete updates twice a year by mail or a secure online survey. Read the rest of this entry »
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November 14th, 2007
Denise I. Campagnolo, MD, MS, Director Clinical Multiple Sclerosis Research, Barrow Neurological Institute, Phoenix,
Arizona; Timothy L.Vollmer, MD, VanDenburgh Fellow, Director BNI Neuroimmunology Program, Barrow Neurological
Institute, Phoenix, Arizona
Key Words:
Antigens – Any substance that provokes an immune response. Ideally, the antigen is a foreign substance, like a protein made by a bacterium. Sometimes T cells inappropriately react with “self-antigens†( i.e., substances made by the body). When this happens, an autoimmune disease can develop. MS is thought to be, at least in part, an autoimmune disease. Read the rest of this entry »
Posted in All Articles, Medications, Relapsing-progressive MS, Relapsing-remitting MS | 1 Comment »
November 14th, 2007
Elizabeth Auld, PA- C––Spinal Cord Program, MSCS,VA Connecticut Healthcare System,West Haven, Connecticut
Introduction
Research into what is happening to the central nervous system in multiple sclerosis (MS) gives hope that the disease can be slowed and eventually cured or prevented. Realistically, persons with MS understand that until there is a cure, they will have to accept and make the best of what is, in fact, a disabling disease. Read the rest of this entry »
Posted in All Articles, Preventative Health, Primary Progressive MS, Quality of Life, Relapsing-progressive MS, Secondary Progressive MS | 1 Comment »
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